The past few days, I took a trip up to Minnesota to go to MAYO Clinic. My mother and I wanted to go and get a second opinion about all my brain tumor issues, and wanted to get more answers. At first I was not looking forward to the seven hour drive, but once we started to drive, I was ready to meet all the doctors that were wanting to help me.
It all began with giving the doctors all my previous information from the other hospitals I have been too. Then it came time to talk to surgeons and come up with a plan as to what they thought would be best. Then it would be time for my mother and myself to make the decision as to what we wanted to do.
All the information we got from them was very helpful and I felt so much better after talking with them, they were able to discuss future plans with me and even were able to tell me what to expect in the near future. Im not normally one who likes to talk about all my issues, but basically it will involve a very serious open brain surgery.
After getting that information I told them that I was ready for whatever needed to be done. It is a very scary thing that I could have to have the surgery sooner than later, but all I know is that I will be in great hands and be okay. I just always make sure to keep telling myself that I will be just fine.
The picture above is a water fountain I found to be very relaxing and peaceful outside of the hospital. It was a nice place to sit and collect all my thoughts.
Ever since I was a little kid, I can remember all the fun times I had with my Grandparents Camping. My grandparents had a huge fancy RV and we would go out to the local camp ground as often as we could, and we even worked at the camp ground too. The RV and the campground started to become a second home for me as a young kid, and it has stuck with me ever since.
Last fall I was given the chance to go do some awesome camping in Grafton IL. I of course said yes and was off! When we first got onto the campground I felt like I was right back at home, even though I was not at my usual spot nor was with my grandparents. But it still felt like I was back at home and it felt amazing. The best part about the trip though was that my phone had no cell phone service. It was the most relaxing time I have had in a long time. Not being able to look at my phone and social media was so relaxing and peaceful, and it was sure nice to be off grid for a few days. Camping will always have a special place in my heart because that is where I spent most of my time with my Grandpa, and I can do that anymore since he is no longer with us. But I will always have the good times to think about to remind myself about all the fun we had camping.
On January 24th 2017, my life hit a huge speed bump. As I was walking to my car from class my body started to stroke out. I was then rushed to Anderson Hospital where I was given devastating news. I was given the news that I had a brain tumor in the middle of my brain on my spinal cord. Shortly after getting the news I was in an ambulance on my way to Barnes Jewish Hospital for emergency brain tumor surgery. After arriving to Barnes Jewish Emergency room I was rushed up to the ICU and put to sleep so they could put an external tub in my head. They had to get the pressure off my head due to the tumor that was blocking the flow of fluid leaving my head.
After waking up from that short procedure I was so confused as to what was going on. I had multiple doctors in and out of my room coming in looking at me and trying to figure out what the next step was going to be. I also was not able to move out of bed because the tub that was in my head was not able to move, so I had to stay very still. If I did want to move, then I had to have a nurse come in a turn off my tub so I would not over drain fluid.
After a few days passed and many test have passed, the doctors finally had a plan on what to do with my tumor. On January 27th, they took me into brain surgery to put a shunt in place. The shunt is in place to drain the fluid off my brain that the tumor is blocking from draining. They also were then able to tell that my brain tumor is inoperable. That means it can not be touched or be tested. That also means that we will never know if it is cancer or not.
Four days after the surgery I was able to go home and start the long road to recovery. As of today, it has been almost six months since my surgery and I have had three MRI’s, two CT scans, two X-rays, and two ER visits to follow. My life has been changed forever and I will always have this tumor with me. It is something I will never be able to get rid of due to the fact it can not be touched, but I just keep telling myself that I am happy to be alive and healthy. This brain tumor was a huge bump in the road, but I am not letting it stop my from living life to the fullest.
In the picture above, that is what I looked like after I got home from the hospital. All my hair was gone, and you can see the shunt they put in my head.
A year and a half ago, my life changed for the better. I was introduced to my best friend and son. His name is Killian James Brady and he is a Blue Heeler and boarder collie mix. Killian is my dog child and will always be labeled my dog child. He is my everything, and I am his everything.
The bond Killian and I have is irreplaceable. It’s and bond greater than I have with any person in the world. It’s also a bond that will never be replaced or taken away. Killian James is not only my son, but he is also my savior of life. In the darker times of my life he was always right by side to comfort and love me unconditionally. The bond is also amazing because he know’s when his dad is not feeling good and when his daddy is sad. It’s hard to explain all the joy that can bring to a person in the darker times knowing to have someone like that with them know matter what.
Killian James Brady is my son and will always be my son. He has changed my life for the better and continues to change my life for the better on the daily basis. No matter what happens in life, I have comfort with him in my life.